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American Society of Transplantation - An organization of transplant professionals dedicated to research, education, advocacy and patient care in transplantation. Some information available in Spanish. Association for the Advancement of Medical Instrumentation - This informative web site helps promote the understanding and beneficial use of medical instrumentation. Centers
for Disease Control and Prevention (CDC) - Has sections on:
disease outbreaks and terrorism events; health and safety; publications
and products; and data and statistics. Clinician Outreach and Communication Activity (COCA) - COCA was established by the CDC for the purpose of timely communication of information on disease outbreaks and terrorism events. Dialysis Facility Compare - This resource is intended to help dialysis patients easily compare characteristics of medicare-approved dialysis facilities so that they can make an informed decision about where to seek dialysis treatment. It includes facility addresses, types of dialysis offered, and number of dialysis shifts offered after 5 pm. In addition, patients may look at quality measures which include info about: the percent of patients at a facility with a Urea Reduction Ratio (URR) of 65 or greater, percent of patients treated with Epogen® with a hematocrit of 33 or greater, and patient survival information. End-Stage Renal Disease Network Coordinating Center (NCC) - The NCC provides centralized coordination and support for the ESRD Network Program. ESRD Information Resource for Medicare - This is a section of the Medicare web site which is devoted entirely to providers of ESRD services. Included here is the new "ESRD Calculator" which is used for computing the composite payment rate for patients. FistulaFirst.org - This web site provides comprehensive information and tools about the Fistula First project. HIPAA Information - from Department of Health & Human Services HIPAA Resources for Healthcare Providers - Scroll down the home page to find links to a variety of HIPAA resources. Home Dialysis Central - Developed by the Medical Education Institute, this site's goal is to educate patients about home dialysis and its benefits. Includes a listing of US dialysis centers that offer home dialysis, descriptions of various types of home dialysis, patient stories, and discussion boards. Hypertension,
Dialysis & Clinical Nephrology (HDCN) - This web site offers
web-based learning to anyone on the Internet seeking medical educational
opportunities. Access to lectures, symposia, abstracts, and a variety
of journal articles are available. The learner must register with
the web site to gain access to the material, and must complete a
post-test and evaluation to earn educational credit. Keeping Kidney Patients Safe - Designed for nephrology professionals to improve ESRD patient safety. Provides a variety of resources and tools including narrated slide shows highlighting best practices for reducing adverse patient safety events. Kidney Drug Coverage - This site was developed by the Kidney Medicare Drugs Awareness and Education Initiative to provide timely, consistent, reliable, and up-to-date information about Medicare and Medicare Prescription Drug Coverage (Part D), specifically for kidney patients and the healthcare professionals involved in their care. Kidney End-of-Life Coalition Web Site - This comprehensive site is intended to promote effective interchange between patients, families, caregivers, payers, and providers in support of integrated patient-centered end-of-life care for chronic kidney disease (CKD) patients. Kidney School™ - Part of the Life Options web site, Kidney School is a web-based learning center that can be used by both professionals and patients. Kidney School consists of 16 modules addressing a wide range of topics from treatment options to lab tests. Nurses and other health care professionals can earn continuing education credits by going to Kidney School. CE credits can be earned for Modules 1 & 2. Module 1 covers basic information about the causes of chronic kidney disease, and Module 2 presents treatment options. Life Options Organization - This site features an easy-to-navigate home page where visitors can order or download free materials; find kidney disease information; read patient tips and stories; and link to "Kidney School™". MedWatch -As part of the FDA Safety Information and Adverse Event Reporting Program, the MedWatch web site reports medical product safety alerts, recalls, withdrawals, and important labeling changes. MedWatch also allows health care professionals and consumers to report serious problems that they suspect are associated with the drugs and medical devices they prescribe, dispense, or use. National Institute of Diabetes, Digestive, and Kidney Diseases - The NIDDK web site provides information about many different health topics, current research and clinical trials, advances and initiatives, grant application procedures, and provides many useful links. National Kidney Foundation - Information about advocacy, support groups, education programs and pamphlets about kidney disease, kidney failure, dialysis and transplant. Nephron.com - Loosely organized but contains lots of information including a listing of closed dialysis units during disasters, links to journal articles, current news stories, a GFR calculator, a food value calculator, and patient education articles. Organ Procurement Organizations (OPOs) - Taken from Transweb.org, this is a list of OPOs within the United States. Promoting Excellence in End-of-Life Care is dedicated to long-term changes to improve health care for dying persons and their families. Particularly targeted are specific diseases including End-Stage Renal Disease. This site contains the final report summary that the ESRD Workgroup compiled regarding the need for palliative care in the ESRD population. Renalnet.org - This site was created to provide a clearinghouse for information on the cause, treatment, and management of kidney disease and ESRD. RenalWEB.com - Lots of information about dialysis including: current news, dialysis yellow pages, discussion boards, legislation watch, meetings and conferences, and hundreds of links to other dialysis resources. RxAssist.org - This site is a compilation of application criteria and forms for use by health care providers applying for free pharmaceuticals for their uninsured patients. Most drug manufacturers offer a limited supply of free prescription medication to eligible patients. Scientific Registry of Transplant Recipients (SRTR) - The SRTR designs and carries out rigorous scientific analyses of data and disseminates information to the transplant community. Social Security Administration - Information about Medicare Benefits. TransWeb: All About Transplantation and Donation - TransWeb features news and events, real people's experiences, the top 10 myths about donation, a donation quiz, and a large collection of questions and answers, as well as a reference area with everything from articles to videos. United Network for Organ Sharing (UNOS) - This agency manages the national waiting list for organ transplants, and the web site is undoubtedly the best place to start when looking for transplant information. United States Renal Data System (USRDS) - A national data system which collects, analyzes, and distributes information about ESRD in the United States. Intermountain
End-Stage Renal Disease Network, Inc. For Network #15 Patients | For Network #15 Providers | About Network #15 | Contact Us Supported by Centers for Medicare and Medicaid Services (CMS) Contract No. HHSM-500-2006-NW015C. The content of this web site does not necessarily reflect the views or policies of CMS or the Department of Health and Human Services; nor does mention of trade names, commercial products, or organizations imply endorsement by the U.S. Government. Network #15 assumes full responsibility for the accuracy and completeness of this web site. |
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